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I just can't get poetic with today's prompt. I may end up attempting to tie things up by making it into a Haibun, but I make no promises there either. This is one of those that's going to be real, raw, and only lightly edited, so buckle up, Bitches, it's going to be a bumpy ride.
By the way, if you have issues with profanity, with subject matter that is on the opposite end of the spectrum from sweetness and light, with mental illness, the black dog, and suicide ideation, you'll probably want to give this post a miss.
Also, please remember these guidelines:
If I may add a couple:
"Have you tried meds?"
I will be 54 years old in February and have lifelong mental health issues. What do you think? The Wonder Drugs don't work the way they're advertised, they make things worse by a long shot. So, please, don't patronize me with that crap.
"Have you tried church?"
Some of the nicest people I've met have been religious.
Conversely, some of the most truly horrible and destructive people I've met have been religious.
If religion helps you, that's great. I don't like organized religion. It did me a lot more harm than good.
But neither of those things are what I came here to talk about.
I came here to talk about the day that the nuke dropped on my life.
Oh, hey, here's a Haiga I made last year. So, there's the poetry part of this assignment. This Haiga has little nuclear clouds in the background.
I'm a lifelong proponent of nuclear disarmament. I grew up during the cold war. When I was a child, I feared that I would die in a nuclear exchange. As a teenager, I figured I might as well party as hard as possible because I didn't know if I had a future. As an adult, I still have nuke dreams, but they're allegorical, just like the nuke that dropped on my life closing in on two years ago now.
I've mentioned before that I was fired from my job as a nurse back in March of 2017. I was really sick at the time I got fired, with both a chronic illness that had become significantly worse and an acute illness that made my lungs and sinuses feel like they were full of Slime.
Yeah, that stuff. When I was twelve, my brother and I got the kind with worms. It came in a little plastic trash can. We loved it.
I miss the fun I had with my brother when we were kids. He's too overworked and miserable and also in constant pain to have much fun now. It breaks my heart.
Anyway, the days playing with Slime and believing that Really Cool Stuff was going to happen were long in the past. I was working when I knew I shouldn't be working. Like I said, I was really, really sick.
I was working as a home care nurse. I had this really pushy coordinator who, when I mentioned that I was sick, said that the family really needed me to be there and it would be okay because I had contracted the illness from that patient, so it's not like he could catch it from me. Besides, this coordinator kept talking about how they were going to replace the nurse who had the four-night week with me (I was working three twelve-hour night shifts with this family and one twelve-hour night shift with another family) because that nurse had lupus and often had to miss work because of it. Great! Not like I can mention that my diabetes had gotten worse and was causing me problems when presented with that, right?
Yeah, I could have, but it has been a lifelong struggle for me to assert myself. I was afraid I'd lose my position. So I buckled down and went in. I had been dozing off during the shift during the past couple of weeks, but I always woke up. Still, it was worrying me, but I didn't feel like there was anyone I could tell.
On this particular night, I didn't just doze. I fell into a dark, dead, dreamless sleep. I'm fairly certain that I had a small stroke because there were certain changes to my cognition following that incident. Judging by the clock, I was out for about twenty minutes. I woke to the patient's father sitting at the end of the bed, glowering at me.
I apologized profusely, gathered my belongings, and left. I knew that I would be fired, which I was.
I felt horrible about the incident and about myself. I very seriously considered suicide. I've dealt with suicide ideation my entire life, but at this point, I was wondering if there was any reason for me to go on living. I was the worst of fuckups. Was I redeemable in any way? I hardly thought so.
At first, the financial hit wasn't as bad as it could have been. I was working part-time for another agency, picking up shifts once every couple of weeks with another patient. I was able to get full-time hours with them although the hourly salary was less. But then, that patient's condition worsened, he was hospitalized and ended up requiring more extensive care than we could provide. The agency never found me another case.
I drifted for a while, delivering food for Uber Eats and eventually trying to drive for Lyft and Uber. This lasted about two weeks, and some dumb stoner kid backed into the rental car I was driving. The rental company did not prorate me for the lost days, and Lyft took close to a month to reinstate me, even though the accident was not my fault. I said, "fuck it." I really didn't like driving passengers anyway.
I tried going back to work in long-term care, but the activity intolerance caused by my diabetes combined with the slight cognitive impairment experienced after the night which led to my being fired from the home care agency made this impossible. You never stop when you are working in a long-term care institution. There is no time to rest or even eat. My blood sugar tanked. Plus, as I discovered, I was no longer the whiz with passing meds that I had been when I did my nursing internship in 2011.
I understood each of the components of passing meds. This patient needs this med in this dose at this time. I understood what each of the meds did. But for the life of me, I could not prioritize which patient to give medication to first. I called my son halfway through the shift and told him I didn't think I could do the job. I emailed my letter of resignation to the staff director the next morning.
I took a job with an all-night grocery delivery service and ended up with a permanent nerve injury to my left arm. I spent half of November in terrible pain, unable to sit up for more than about 45 minutes at a time before I had to lie on the arm to try and numb the pain. I again considered suicide, this time not out of self-loathing but because the pain was nearly unbearable. I had to wait for two weeks for Medicaid to kick in before I could start physical therapy. I hadn't been able to afford insurance before that and was making too much with the delivery service to have Medicaid. It is one fucked-up system we have going, and there is nothing anyone could say to make me believe otherwise. It is straight-up fuckery, plain and simple.
At this point, the arm pretty much feels like a lump of clay. Sometimes a tingly lump of clay. But I'll take that over a hideous pain that induces suicidal feelings. Before anyone gives a person desperate for pain relief grief, think of the worst pain you have ever felt in your life. Now, ponder on the idea that you could not stop that pain. Bitch, you aren't going to just grin and bear it. You're going to do whatever the hell you have to do. I can't stand people who get sanctimonious about folks who become addicted to pain medications. Nobody wants to be in pain. End of story.
After a couple of weeks of physical therapy, I was able to drive again and ended up at my current job: delivering food. This is the sort of job that people have been taught to look down their nose at. To them I say, well, Motherfucker, I have your fucking food here, which you did not have to cook or pick up. You're better than me just because you work in an office? I say no. This kind of shit "master and servant" attitude does no-one any good. Rich people aren't better than poor people. In fact, to para-quote Bob Marley, some of them are so poor that all they have is money. Some of them are terrible people, and I would find it torturous to be in their presence for one minute.
Case in point, and ain't it the truth.
I went through more than a year of thinking "if I'm not able to be a nurse anymore, what value do I have?" I'm no longer in a "helper" profession. I'm no longer able to do the kind of work that said "helper" profession requires. I not only have a psychological disability or three, but I am also now physically disabled as well.
This society behaves as if people with disabilities deserve to live in poverty. I never believed that, but I kept feeling as if I'd done "something to deserve this."
I can't remember exactly when the breakthrough happened, but one day I got really pissed off and realized that no, I damn well did not do anything to deserve to be pushed into poverty. I lose Medicaid if I make a dime more than $1100 a month, but who the fuck can live on $1100 a month? I don't qualify for SNAP because I have a 401K from the job I held for close to 11 years and I don't want to take an $18,000 hit by liquidating it. I want that whole fucker to go to my son when I go tits up. No ifs, ands, or buts about it.
As for being a nurse, the truth is, I never wanted to go into that profession. I was encouraged to go into it by my family because my mother had been a nurse. While I had some nice moments with the kids, and while I had some nice moments with my co-workers and the residents at the retirement community when I was working there, I was done. I was burned out. I really didn't want to do it anymore, and I felt extremely guilty about that. What kind of person doesn't want to help other people?
It isn't that I don't want to help other people, but I think it's long past time that I acknowledged that I need help too, that I deserve to have help, that I'm not garbage because I'm disabled. No disabled person is garbage. We need to stop this shit attitude in our society, and we need to stop it yesterday.
My disability doesn't really make me angry. Sometimes I wish I could still run and jump like I could when I was a kid. But I like to walk, and I hope I'll be able to walk for the rest of my life. Maybe the time will come when I need a scooter or power chair. If I do, I won't be bitter. Bodies age, shit happens. It is what it is. However, I have to be brutally honest. If I deteriorate to the point where I need to spend the rest of my life in a long-term care center, or if I'm diagnosed with dementia, that's the time I pull the plug. Those are two situations that I find absolutely intolerable. I won't do it to myself, and I won't do it to my son.
By the way, inasmuch as we need to acknowledge that depression is a very real illness, as real as any physical malady, we also need to acknowledge that sometimes depression isn't a brain-based issue. Our world is very fucked right now, and anyone who looks around and doesn't see terrible problems that should have been fixed a long time ago is shutting their eyes, sticking their fingers in their ears, and yelling "lalala, can't hear you."
It isn't going to get better by ignoring it, People.
It's really not.
And that's all I have to say about that.
XOXO,
Cie
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