Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts

Saturday, November 27, 2021

Poets and Storytellers United: Friday Writings #4: Pain in Ink

Poets and Storytellers United: Friday Writings #4: Pain in Ink: Greetings, my dearest poets and storytellers, and welcome to another Friday Writings session. I hope your weekend starts well and keeps gett...

I mostly experience widespread low-grade chronic pain. It's hard to explain to people that it makes me tired.
 
Midway through November 2017, I started experiencing excruciating pain in my left arm. I ignored the numbness and tingling that preceded this pain. As it happens, I severely injured the median nerve by continuing to bear heavy loads while delivering groceries and alcohol. I had no insurance and had to quit my job and wait for Medicaid to kick in. During that six weeks, I was in non-stop agony that was only alleviated by laying on the arm until it went to sleep. Fortunately, physical therapy helped with the pain fairly quickly, but I still don't have a full range of motion in the arm.

Monday, November 11, 2019

Carpe Diem #1779 Cliffs of Moher ... a tribute to Jane Reichhold (monody, Senryu)


in that last moment
I hope that you were at peace
may you now fly free

~Cie~


Notes:
I was previously unaware that Jane Reichhold (1937 - 2016) had committed suicide because the pain of her fibromyalgia had become unbearable. Please click the Fishy banner to find out more about Jane's story.

We will never learn how to reduce the rate of suicide if it is a stigmatized, taboo subject. If people are afraid or ashamed to discuss suicide ideation, then their struggles will remain internalized. The ways that suicide ideation and attempted suicide are currently handled are ineffective and the unthinking and unfeeling diatribe that the surviving family members of a person who committed suicide are subject to are simply shameful.

Any time a celebrity commits suicide, there's always someone sanctimoniously spouting about how "selfish" this person was, and I want to take them aside and shake them and shout: "Hello, you insensitive twit! Did it never occur to you in your moment of self-righteousness to realize that anyone listening to you could have a loved one who took their own life? How dare you be so thoughtless!"

When I was in high school, I had a friend whose brother had committed suicide when she was eight years old. She said that people would come up to her on the playground and tell her that her brother was in hell for what he'd done. I say there ought to be a special spit in hell reserved for mealy-mouthed marshmallows who make such unkind assertions.

I leave you now with this banner that I use as my Facebook avatar anytime a celebrity takes their own life because I just know that the ignorant spoutings are going to elevate at such times.


Sunday, November 3, 2019

Ornery Reviews: Happy Healing and a Testimony



Genre:
Nonfiction/Health/Alternative Medicine

Rating:
Four out of Four Stars for Online Book Club

Disclosure:
I received a free copy of this book for review purposes.
If readers purchase a copy of the book through the above preview link, I earn a small commission from Amazon.


As I explain in my Online Book Club review, this book does not fall into the category of mysticism or metaphysics. Although the author occasionally suggests what might be interpreted as prayer, the techniques outlined in Happy Healing are self-hypnosis. Self-hypnosis is not a new treatment, but the approaches offered in the book are novel.

In my review, I offer a story of how the techniques in Happy Healing helped me come to peace with the injury which led to my being unable to continue working at my job delivering groceries and alcoholic beverages.

Two years ago, I worked for a company called GoPuff, which is a subsidiary of GrubHub. I advise that no-one work for any subsidiary of GrubHub because they do not care one iota about the well-being of either their employees or their contractors. They never had enough drivers on the schedule on weekend nights. They would have four managers in the warehouse. Three of the managers would switch over to driving, leaving one manager running around like a chicken with her head cut off. I have nothing bad to say about any of the onsite managers. They worked very hard. GrubHub, however, gets no love from me.

I started feeling tingling in my left hand, which I ignored. I was carrying very heavy loads, sometimes over distances of several blocks because the deliveries were often in the middle of downtown Denver and there was no place to park, sometimes up several flights of stairs in buildings where there were no elevators. One time I almost fell through a porch that had rotting wood. Many times, the stoners who would order from us wouldn't answer the door. After pounding on the door for several minutes, I would call the warehouse and the manager would call the customer. There were times when the manager couldn't reach the customer either. I liked those customers better than the ones who would cuss me out because the delivery was made several hours after they ordered it and GrubHub customer service couldn't be bothered to call and tell them it was going to be late.

There was no interim "this is getting worse" with my arm. It went from numbness and tingling in my hand to unbearable pain from shoulder to fingertips. At that point, I had no insurance. I had to quit working so I could get Medicaid back. I couldn't sit up for more than about 45 minutes before the pain in the arm became unbearable and I had to lie down on it to numb it. I have lived most of my life with chronic widespread low-grade to mid-grade pain due to fibromyalgia. Chronic severe pain is a different animal entirely. There were times when I very seriously considered suicide because the pain was so intense. I forced myself to wait until I had Medicaid so I could get physical therapy.

Although I was already sympathetic, I came to a personal realization of exactly how people in chronic pain become addicted to painkillers. When you are in chronic intense pain, the thing you want most is for the pain to stop, and you will do anything to achieve that. If you have never endured intense pain, imagine that someone was whacking your arm repeatedly with a hammer--hard. That's what chronic intense pain is like. Sufferers of chronic intense pain just want relief. How anyone can fail to understand that very simple idea is beyond me. Sanctimoniousness never helped anyone.

Back to my story. The physical therapy helped greatly. My arm went from being in constant severe pain to constant mid-grade pain with flares of severe pain to constant low-grade pain with flares of mid-grade pain to feeling like a lump of clay with flares of low-grade to mid-grade pain. Unfortunately, Medicaid only pays for twelve sessions of physical therapy per injury, so that was where things leveled out, and I was very grateful. Over time, the arm regained enough sensation that it no longer feels like a lump of clay. It is always slightly numb and I do not have a full range of motion in the shoulder area, but it is a vast improvement over being in constant intense pain which makes me consider suicide.

One of the exercises presented in Happy Healing involves giving the body part in pain a name and "talking" to that part. I named my arm Amelia. As I talked to Amelia, I realized that I was still angry with her for betraying me and making it so that I couldn't work physically demanding jobs such as delivering packages anymore. I also realized that Amelia had been trying to warn me that something was going wrong, and I ignored her to my detriment. I apologized to Amelia for blaming her for what happened and promised to listen to her (and the rest of my body) in the future.

As a result of reading and engaging in the exercises outlined in Happy Healing, I have a truce with my body and am no longer as prone to pushing myself to the point of collapse or injury. I appreciate this book and think that it was useful and helpful. The author's approach may seem a bit "goofy" to the more skeptical sorts, but I recommend trying the exercises. I didn't really think I'd get much from them when I started reading the book, but they turned out to be surprisingly beneficial.

~Cie the Ornery Old Lady~



Free Use Image from Pixabay

Tuesday, April 16, 2019

NaPoWriMo 2019 Day 16 + Poems in April 2019 Day 16 & 5: Poetry As the Place Where the Spirit Within Hemorrhages Truth

Image by Enrique Meseguer from Pixabay

You return whenever I write poetry
Troublesome little ghost
Not sugar and spice and everything nice
You mournful, shadowed thing

Troublesome little ghost
Your nights filled with wanting and regret
You mournful, shadow thing
Needing to bleed out your words

Your nights filled with wanting and regret
I allow you to emerge from my cold shell
Needing to bleed out your words
"The poem is the way," I say

I allow you to emerge from my cold shell
Offering truth a way to be set free
"The poem is the way," I say
You need not put on false airs with poetry

Offering truth a way to be set free
Poetry, I think, is ultimate honesty
You need not put on false airs with poetry
Or so it is that I have always believed

Poetry, I think, is ultimate honestly
You need not pretend to be aught but what you are
Or so it is that I have always believed
But there are those who disagree on poetry

You need not pretend to be aught but what you are
You need not present as light when you are shadow
But there are those who disagree on poetry
Poetry, they say, is the domain of sugar and spice

You need not present as light when you are shadow
Sad little ghost, pay no mind to the Poetry Police
Poetry, they say, is the domain of sugar and spice
Bleed your truth as freely as you need

Sad little ghost, pay no mind to the Poetry Police
You mournful, shadowed thing
Poetry, they say, is the domain of sugar and spice
You return whenever I write poetry

~Cie~



Notes:
The poetic form is Pantoum. Fortunately, a Pantoum need not rhyme.
The Poems in April prompt #16 was to create a poem with a title starting with "Poetry As..."
The Poems in April prompt #5 was to describe a supernatural creature who is a troublesome housemate. I can think of no more troublesome a housemate than the child I once was who each day laments that the big dreams she had for her life slip further and further away from her grasp, fading into the impossible.
I think the NaPoWriMo prompt ended up eating the dust of the other two prompts.
A couple of years ago when I was doing OctPoWriMo, I almost ended up ceasing participation in poetry blog hops for good when I allowed the troubled spirit who will always be a part of me to express itself and was admonished that my poetry was "catharsis" and I would one day become "a beacon of light in the world" or some such thing.
To me, these well-meaning but inaccurate statements showed two things.
First, that people who are not happy by nature are unacceptable as they are and must become, or at least pretend to be, the sort of person who is "a light in the world." 
Second, that dark poetry (and depressive people) are not as valid or worthwhile as happy, well-adjusted people writing poems about the joys of life and how grateful they are to live under the rule of a benevolent deity in a happy and joyful world where there are no Debbie Downers or Negative Neds messing things up with their dark ickiness.
To me, poetry must remain the domain where you can TELL IT LIKE IT IS, not like other people think it's supposed to be.
Poetry must remain the place where one can hemorrhage one's soul all over the damn place and not have people constantly trying to slap smiley bandages on their spiritual wounds.
Poetry must be allowed to be dark and filled with pain.
During the final years of my nursing career, a statement had been popularized that "PAIN IS WHATEVER THE PATIENT SAYS IT IS." 
I greatly advocate for this belief. It is so much more helpful than awful epithets such as "drug-seeking behavior," which had previously been the dismissive go-to whenever a patient requested pain medication earlier than it was scheduled. 
People who experience high levels of chronic pain do not respond to pain medications the way people who do not experience chronic pain (or who experience chronic pain of lesser degrees) respond to pain medication. A person with high levels of chronic pain could ingest enough pain medication to knock out a large horse and be perfectly coherent, and I'm only being slightly hyperbolic.
FYI, low-grade chronic pain (such as I have) isn't a walk in the park either. I'm tired all the time and have a tendency to experience brain fog and disturbed sleep. My pain levels aren't such that I require narcotics, but NSAIDS don't really help. 
I experienced intense chronic pain for about six weeks when I initially injured the median nerve in my left arm. I couldn't sit up for more than about 45 minutes before I had to lie on the arm to try and numb it. Intense chronic pain is no joke, and anyone who says things like "people need to just push through the pain" or fail to understand why people become so desperate for relief that they obtain medications through illegal channels because the medications they've been prescribed legally aren't cutting the mustard need to get off their high horse. 
At this point, my left arm constantly tingles. I've gotten enough sensation back in my left hand that it no longer feels like a lump of clay, but I was damn grateful for "lump of clay" as opposed to constant searing pain up and down the arm. Physical therapy saved my life, literally. I would need more P.T. to get rid of the constant numbness and tingling, but Medicaid will only pay for 12 sessions per injury. Better than nothing, but ridiculous to put a limitation on the sort of thing which doesn't tend to behave in a predictable fashion.
In any case, just as pain is whatever the patient says it is, POETRY IS WHATEVER THE POET SAYS IT IS.
My poetry need not be "catharsis." It need not lead to me becoming "a beacon of light in the world" to be absolutely 100% valid. The wounded inner self is allowed to express its truth without expectation of transformation.
People with depressive personalities are valid as they are. They need not be drugged into compliance. For some of us, the drugs don't work anyway, or they make things worse. Drugs are not the answer to everything.
I don't need to be like you. 
I am valid just as I am.
Apologies for jumping on ye olde soapbox, but some things cannot be said enough.